About Us

WHY WE DO WHAT WE DO

For us, its about being a mission-based business. We love building quality resources and we believe in hospice and palliative care.

We build programs, partnerships and projects that better educate and inform families, care providers and businesses on all aspects of palliative and end of life care.

Our programming efforts include the best and brightest speakers in the country on the topics of grief and bereavement, the iconic Elisabeth Kubler-Ross, and the business of palliative care, as well as mental health topics including suicide, depression, hope and the gift of life.

Through our speakers bureau and collaborative partnerships, we hope to inform and educate those who those who are living or working with ill or dying patients...as well as hospices, hospitals, vendors and policy makers.
Our partnerships include building bridges and dialogue between brilliant forward thinking business leaders and visionaries in the hospice and palliative care communities. We're here to grow your business through education while also educating your community at large.

We believe in the saying: "Together we can do anything."


WHAT IS PALLIATIVE CARE?

World Health Organization (WHO) Definition of Palliative Care
Palliative care is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual. Palliative care:

  • provides relief from pain and other distressing symptoms;
  • affirms life and regards dying as a normal process;
  • intends neither to hasten or postpone death;
  • integrates the psychological and spiritual aspects of patient care;
  • offers a support system to help patients live as actively as possible until death;
  • offers a support system to help the family cope during the patients illness and in their own bereavement;
  • uses a team approach to address the needs of patients and their families, including bereavement counselling, if indicated;
  • will enhance quality of life, and may also positively influence the course of illness;
  • is applicable early in the course of illness, in conjunction with other therapies that are intended to prolong life, such as chemotherapy or radiation therapy, and includes those investigations needed to better understand and manage distressing clinical complications.

World Health Organization (WHO) Definition of Palliative Care for Children
Palliative care for children represents a special, albeit closely related field to adult palliative care. WHO’s definition of palliative care appropriate for children and their families is as follows; the principles apply to other paediatric chronic disorders (WHO; 1998a):

  • Palliative care for children is the active total care of the child's body, mind and spirit, and also involves giving support to the family.
  • It begins when illness is diagnosed, and continues regardless of whether or not a child receives treatment directed at the disease.
  • Health providers must evaluate and alleviate a child's physical, psychological, and social distress.
  • Effective palliative care requires a broad multidisciplinary approach that includes the family and makes use of available community resources; it can be successfully implemented even if resources are limited.
  • It can be provided in tertiary care facilities, in community health centres and even in children's homes.

    Source: World Health Organization: www.who.int


     

    PUBLISHED ARTICLES

  • American Academy of Pediatrics, Contributor for AAP Journal: SOHPM; Opioid Use in Pediatrics, Our Story, Spring, 2011; Rare Disease and Partnering with NORD, Fall, 2011
  • Palliative Care for Infants, Children, and Adolescents; Dr. Brian Carter, Dr. Marcia Levetown, Editors; Co-author for chapters on Communication at the End of Life; Barriers, Education and Advocacy in Palliative Care; John Hopkins Press.  Fall, 2011 
  • Open To Hope, Inspirational Stories of Healing After Loss;  Dr. Gloria Horsley and Dr. Heidi Horsley, Foreword by Dianne Gray; Published June, 2011
  • Journal of Pain and Pharmacotherapy: Art Lipman, PhD.  Published author of abstract: Lecture By A Physician, June, 2011
  • HOPE Magazine: Children’s Hospice and Pediatric Palliative Care Coalition’s annual journal; “Ebb and Flow”; January, 2010
  • 2009 Society of National Association of Publications (SNAP) EXCEL Award Winner: Gold Award: Newsletter/Column: Association of Death Education Counselors (ADEC), The Forum: Continuing Bonds by Cooking with Austin
  • Room 217 Foundation: Our Rituals, Our Music
  • Neurodegenerative Brain Iron Accumulation Disorders Journal Articles: Morphine Use in Pediatrics with Dr. Deidre Woods; Humor and Caregiving: 2004